The old adage says, “No news
is good news”. In almost two months since my last blog, there was no news in my
life after cancer, thus nothing to write about. I was living a normal pre-cancer
life--busy with work, family and volunteer obligations. It has been nearly four
years of living without evidence of disease, so life has been good.
Then two health related
events happened one week after another this past month.
During my regular cancer
quarterly monitoring appointment, my family doctor checked my blood pressure. For
the first time in my life, it was unusually high. She sent me home with
instructions to check it regularly for two weeks to see if the pressure would
lower. This was not the case.
So, in mid December, I was
put on high blood pressure medication. We are not sure if the high blood
pressure is hereditary (my father had and sister has high blood pressure), or
if it is being caused by my anxious personality. So I have a new health issue
to manage, which is not difficult with medication and my continued regime of
proper diet, regular exercise, and healthy weight.
But then there were unusual lab
results that came after my last quarterly check-up. Another surprise, and one
that is more difficult to manage.
I have been diagnosed with
hypoparathyroidism--a rare and permanent condition where my body is secreting
abnormally low levels of parathyroid hormone, resulting in low levels of
calcium and high levels of phosphorus in my body. It can be hereditary, can
occur if the thyroid is damaged in surgery, or can arise with an endocrine
condition. None of these apply to me, so we are not sure how I acquired it.
My breast cancer nurse
educator tells me it is likely a side effect from my chemotherapy and radiation,
as the four tiny parathyroid glands lie behind the thyroid gland in the neck.
The thyroid gland area is at risk whenever breast cancer patients undergo
chemotherapy and radiation. She says that the condition can develop long after
active cancer treatment is completed.
I do not know how long I have
had hypoparathyroidism. I suspect it has been for a few months. There have been
several clues that it may have been developing. I chalked it up to being in my
50’s and living with an aging body.
These last few months, I
have had increased low-level chronic pain in my legs, feet, hips, and lower
back. There have been terrible charley horses (always at night) in my legs,
feet and hands that remind me of when I was calcium deficient when pregnant. (These
side effects can also occur while on Tamoxifen, my chemo maintenance medication,
so I thought it was the trigger). My doctor put me on anti-inflammatory medication,
but I had to go off of it because of my high blood pressure.
My bones ache at times. Some
nights I hardly sleep, as pain will wake me up several times. Fatigue is now
part of my daily life. I have developed extremely dry and flaky skin and now
react to skin care products I have used for some time. My nails are so soft that
they snag and tear.
At my last eye appointment,
my optometrist was concerned with the results of some of the tests and is
monitoring my eyes more carefully. He was perplexed by the test results, which
will see me undergo retesting early next month. He has been monitoring my eyes
because of the risk of cataracts from chemotherapy, and now will have to
monitor my eyes with hypoparathyroidism as it can cause eyesight problems.
If left unchecked additional
problems like impaired kidney function, heart issues, and osteoporosis can
occur with hypoparathyroidism.
My family doctor is
monitoring this condition with quarterly blood tests. I will be monitored for
the rest of my life. Generally, hypoparathyroidism can be stabilized with consumption
of calcium-laden foods, calcium supplements, and high doses of Vitamin D. If
the parathyroid hormone levels continue to be low with my next tests in
February, I will then be referred to an endocrinologist for an in-depth assessment
and further treatment.
In the meantime, I have to
learn how to manage this new health issue. It confuses me, so I will see my
breast cancer nutritionist early in the New Year to determine what foods I can
eat with this condition. Foods that are high in calcium (particularly dairy) are
also high in phosphorus. I do not know how to lower phosphorus levels in my
body while boosting my calcium levels. It is further complicated because I’m lactose
intolerant and I avoid soy based foods because of their natural estrogens,
which can be an issue with an estrogen positive breast cancer history. I am hoping
she has some answers.
It is a setback as I work
through these new health challenges. At times I feel discouraged, but I refuse
to give in. Instead, I shift my thinking and remember to be grateful to have had
almost four years added to my life thus far because of cancer treatments. I
continue to fight daily with Strength, Courage, and Determination.
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